MeSH ID: n/a
Genetic data is personal data relating to the inherited or acquired genetic characteristics of a natural person which result from the analysis of a biological sample from the natural person in question, in particular chromosomal, deoxyribonucleic acid (DNA) or ribonucleic acid (RNA) analysis, or from the analysis of another element enabling equivalent information to be obtained.
Best practice for sharing this type of data:
Caution should be practiced in processing and sharing of sensitive personal data to ensure adequate permission has been granted.
Most suitable repositories:
Genetic data may be submitted to the Biological General Repository for Interaction Datasets, DNA Databank of Japan, European Nucleotide Archive, Expression Atlas, Genetic Testing Registry, FlyBase, GenBank, NCBI Gene, Gene Expression Omnibus, Life Science Database Archive, NCBI Genome, MGnify, NCBI Assembly, Rat Genome Database, Saccharomyces Genome Database, Reference Sequence Database, Signaling Pathways Project, The Arabidopsis Information Resource, The Zebrafish Information Network, TreeBase, VectorBase, WormBase, and Xenopus laevis and tropicalis biology and genomics resource.
Best practice for indicating re-use of existing data:
For public datasets please provide a DOI or other stable identified for the dataset itself *and* include a citation for the dataset in the reference list. Be sure to indicate exactly which data has been re-used, particularly when multiple versions of the dataset exist. In many cases, this is best achieved by sharing the code used to extract the part of the data that you analyzed. In some cases it may be best to share the exact dataset(s) you analyzed as well.
For access-controlled data authors should provide a link to instructions for obtaining access (e.g. here is the information page for ADNI (Alzheimer's Disease Neuroimaging Initiative): http://adni.loni.usc.edu/data-samples/access-data/).
When re-using a private dataset from a previous study please contact the data owners to discuss how the data can be made public.